Discovering and developing a new drug is an expensive and challenging process that can take in excess of 10 to 15 years from discovery to commercialization. At Leadiant Biosciences, Inc., we work with rare dedication to discover and develop therapies for patients with rare diseases, while partnering with investigators, researchers, and physicians worldwide to produce quality data and compounds for the patient communities we serve.
Patients and caregivers play an increasingly important role in researching and developing new therapies for rare and ultra-rare diseases. This can include funding research through donations, participating in a clinical trial, contributing to a patient registry, working with regulatory decision makers, and sharing experiences to help companies and researchers better understand a disease.
Patient advocacy groups are critical links between patients, caregivers and the makers of rare disease treatments. These groups can contribute to research and help increase awareness among their community about research opportunities.
Leadiant employees work with rare dedication to provide therapies for patients with rare diseases. We partner with rare disease communities, physicians, and researchers worldwide to help patients overcome challenges and be a resource of hope.
EveryLife Foundation for Rare Diseases
Global Genes
National Institutes of Health: Genetic and Rare Disease Information Center (GARD)
National Institutes of Health: Genetics Home Reference
National Newborn Screening and Genetics Resource Center (NNSGRC)
National Organization for Rare Disorders (NORD)
At Leadiant Biosciences, Inc., we understand that patients living with rare diseases often require a unique level of care and support. As caregivers, family, friends and loved ones are critical links in a patient’s support system — whether it’s picking up a prescription, preparing a meal or lending a hand with daily activities.
We recognize that caregivers may also require guidance and assistance with questions regarding medication, insurance, and more. We encourage you to contact us with any questions. You may also find useful resources and information from the Family Caregiver Alliance.
