How can patients participate in research for new therapies?
Patients and caregivers play an increasingly important role in researching and developing new therapies for rare and ultra-rare diseases. This can include funding research through donations, participating in a clinical trial, contributing to a patient registry, working with regulatory decision makers, and sharing experiences to help companies and researchers better understand a disease.
Patient advocacy groups are critical links between patients, caregivers and the makers of rare disease treatments. These groups can contribute to research and help increase awareness among their community about research opportunities.
At Leadiant Biosciences, we work with rare dedication to provide therapies for patients with rare diseases. We partner with rare disease communities, physicians, and researchers worldwide to help patients overcome challenges and be a resource of hope.